Brace is the Man

  October 31 at 2:23 PM Monday 10/28 Appointment Miracles A few more miracles after I posted. Three doctors gave us a first appointment or moved up a later appointment Monday afternoon. I'm telling you - your prayers are helping. Tuesday 10/29 . Opthamologist / Oncologist / Pet CT Started the day with Opthamologist that said that Brace's eye pressure was good and at the moment his eyes were not affected by the cancer. She did say when everything is done he might need to fix a cataract. He did prescribe a regiment for sleeping and moisture that should help his eyes. Then we went to visit Oncologist. He met with Brace, James Swift (Kjarstin's husband) and I for 2.5 hours. He had talked to a lot of our other doctors including the team that did the pathology report. The pathology experts are thinking it is SNEC but he wants to talk to them again. Small Cell Neoendocrine Carcinoma. He ordered two new CT scans and a brain MRI. Thanks ...

  October 28 at 12:29 PM Miracles: Thank you for your prayers. I had miracle after miracle today. I got three new appointments easily this week including dental oncologist, primary care, xray, and opthamologist neurology specialist. Penelope: Last night, Kjarstin, James, Brace and I met with Penelope on Google hangouts with her Mission Presidents. They are great people. Penelope seems fine. Brace told the CEO this morning what we are going through. He was compassionate and kind about it all. He loves his boss, Dave, and all the people at Marantec. Keep praying - it is working.

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

Brace has cancer..... We are happy to have anyone on this list that is interested. Just have people that are interested ask to join. The name of the group is Brace is the Man. Sept 5th: Brace had his first severe nose bleed. In those 3 weeks waiting for surgery he had 30 nose bleeds during that time. Oct 10th: Brace had nose surgery to correct the 2 cm hole in his septum. Oct 12th: We were told that the found a tumor on the right side of his nose and they tried to get a lot of it but couldn't get it all because it was connected to bone and other vital areas. Oct 15th: We were told the biopsy came back with a diagnosis of Sinonasal undifferentiated carcinoma, SNUC, a rare and aggressive nasal cancer. Oct 22: We saw our first cancer surgeon Dr. Luu, an ENT cancer surgeon. He did a cancer fellowship at UCLA about 10 years ago. Kjarstin and James came with us to the appointment. He is the Director for a Cancer Center connected to Mission Hospital Oct 25th: We have a PET...