The week after continues

Tuesday: We had a 10am appointment with the Palliative Doctor and his team. (the Dr, the Nurse Practitioner, and the Social Worker) Dr. Nguyen is Karen's favorite doctor. He is kind, brilliant and thinks Karen is great. He happens to be really good with Brace too. :)

So Dr. Nguyen came to see Brace everyday in the hospital, so he knows Brace's humor. The nurse and the social worker had only seen Brace when he couldn't talk so they were blown away with Brace's larger than life personality. I was like, "Look he might be smiling and saying jokes here and there, but he is extremely miserable and weak. He barely was able to stand up in the elevator and come to this appointment." The woman just laughed and said, "But look at him, he looks so much better than last time.... "

So what we got out of the appointment is Dr. Nguyen said he should take the medicine we got in the hospital and it would probably help with his nausea. I was pretty scared of the medicine, because when we used it at home after the hospital it made him very sleepy. When you are throwing all day and not eating, maybe sleeping all day is a great thing?

At night Stacie and Nathan White came to visit and bring us some soup.

Wednesday: No doctor appointments. The amazing Ammon Harps and Julie Balhorn went back up to Arrowhead in the Glee car to program the exterior cameras, doorbells, door locks and google hub. Brace struggled keeping his food down and it was pretty much a miserable day.

Thursday: This morning Lynda, my sister, came to visit from up North. Brace didn't eat very much formula today, but he was able to keep about 2 cartons of formula down. At this writing he hasn't thrown up once by being very careful how much he ate and trying to not move too much. That was the big goal today. We are hoping by this weekend he might not be so fragile.

Today in the mail we received the fart machine with a note and picture from Scott & Kandee from Garage Doors Unlimited from San Diego. Brace got a good chuckle out of that. Those of you that know me, know that I only shop online so I get a lot of packages. I just open them and then look. So I open the package and there is a fart machine and I know that must be for Brace. :) . As my girls would say, if I could just look at that address I wouldn't have these problems.

Thank you's

*******************

Garage Door Unlimited for your note and package.

Webber Boys for still doing the trash....

Thank you to Martin, Ammon and Julie for keeping the arrowhead project moving forward.

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Brace is the Man

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