Skip to main content

Dr. Carroll and Dr. Lu

Two Dr. Appointments:

Thursday we Zoomed with Dr. Carroll. He was thrilled with the clear scans but he wants the ENT to scope his nose every three months and do an MRI and PET every 3 months. He also encouraged us to see the brain surgeon.
Friday we Xoomed with Dr. Lu, the ENT Cancer Surgeon, and he said he is happy to scope his nose. Brace has a lot of problems breathing at night. Dr. Lu said as soon as COVID calms down he can get open air ways surgically or get rid of crusting from the original nose surgery when they found the cancer. He so wishes they could do that now but is thrilled that he might be able to clear his airways.
Saturday afternoon we drove back from the mountains and stopped by my sister's house in Moreno Valley for gifts she left on the back porch. Love you Diane and Scott and Leslie.
We are home and happy to be alive. Now that Brace is eating high protein food for lunch and dinner he feels so much stronger. He eats terrible kids cereal in the morning, but he has to have a little rebellion in there right? He is still Brace at the end of this...
James and Brace worked but Karen & Kjarstin celebrated Spring Break. Karen had the best weekend ever at the Lake House. A week full of beautiful snow. Sleeping in til 8 or 8:30am every day was awesome. I finished our beautiful Glee website focusing on virtual lessons and we start google advertising Glee virtual music lessons on Monday.







Comments

Post a Comment

Popular posts from this blog

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...
Post a Comment
Read more

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...
Post a Comment
Read more

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....
Post a Comment
Read more