Short Version: Brace looks good, but feels very weak. Recovery is a lot slower than we both had hoped.
Monday: P-Day is always fun because we get to chat or video chat with Penelope with what seems like all day. 9:45am Brace went to physical therapy. He almost didn't go this morning. We sent lots of messages to both the oncologist and the palliative doctor. We either have a pain pill problem or there is something wrong with his stomach. Thank you to the many of you that gave us referrals for GI doctors. We have two appointments next week. I love his therapist but she is a talker. I think Brace is like most men and he can only take so much women talk. Who knows why he married a talker like me? (please don't comment on that) He calls the gym, an old man's gym and says the therapist is lonely. He continues to feel nauseous and awful.
Lake Arrowhead is getting close. Foosball table was installed today for the game room. Both Ryan and Art came to work on the house today. Working on painting the fireplace black, putting together the beds for the bunkroom, taking down dish tv on the roof, building the child's table, high chair and pack and play crib. (The idea is that it is good for family reunions) Our neighbors the Demmons got our packages for us as a favor and saw the high chair and crib and were sure they were in on a secret of James and Kjarstin. They were pretty bummed when they found out Kjarstin was not pregnant. LOL
Tuesday: Our glass guy that installed the stair rail and made a custom kitchen glass table top tried to come to Lake Arrowhead today. On the way the strong winds broke our table top. Sad but true.
Dr. Nguyen said we should stay on all the same meds until we meet next. Brace was tired today and weak but NO throwing up! Hurray!
At night Brace and I went for our Stake temple interviews.
Wednesday: No Therapy - Brace was excited.
Thursday: Physical therapy again. Lots of talking. No throwing up! The slider glass people came to replace the rollers and the handles at Lake Arrowhead. I went to the temple for the first time in months. "Peace beyond comparing."
Friday: Speech therapist appointment today. A woman that gave us swallowing exercises. Just between you and me, he's not that convinced that doing exercises will help him. He is eating real food once a day. It takes him a long time but he can do it!
Saturday: I went to Arrowhead without Brace to get the Hot Tub cover replacement and get Art to help me hang pictures. While I was gone, Brace went to El Pollo Loco to get his favorite chicken and potatoes. He still has four formulas a day through his tube. I left about 5:30pm and raced down the mountain to make it to Stake Conference at 7:15pm. Brace was there with mask and gloves. He didn't feel very good at night and made it for 45 minutes.
Sunday: He felt so much better in the morning. We like mornings. I sang in the choir at 8:15am and he showed up for the meeting at 10am. Most people didn't know who the bald guy was with the black mask. Then when I sat by him at the end of the meeting, they suddenly knew it was Brace.
Monday: A month ago Marantec, Brace's company that he works for, asked him to attend the Salt Lake International Door Association. This will be his first week back at work. Luckily the flight didn't make him sick and he was took three formulas by his tube before we left for the airport. (1500 calories). He wore his mask and gloves at the airport to stay healthy. When we checked in the hotel we walked 2 blocks to PF Changs and he was able to have one or two ribs and quite a few lettuce wraps. (a lot of food for him) The lettuce was very fresh and wet so it worked marvelously and slid right down his throat. The most miraculous thing is that while we were walking to the restaurant we came across ten guys walking back from Settebello's (the Moffitt's favorite place) and it was his team from work. It was fun to meet everyone. Off to bed.... I've got all his meds and formula set up in the room.
Thank you's
*************
Melissa Fulton, Jalane Hong and Staci White for offering to do errands.
Bob Demmon for taking in heavy packages from our house and helping with our trash.
Prayers and well wishes from you online and at church. We can feel your prayers.
Thank you for putting our names on your prayer rolls at your church or temple.
Monday: P-Day is always fun because we get to chat or video chat with Penelope with what seems like all day. 9:45am Brace went to physical therapy. He almost didn't go this morning. We sent lots of messages to both the oncologist and the palliative doctor. We either have a pain pill problem or there is something wrong with his stomach. Thank you to the many of you that gave us referrals for GI doctors. We have two appointments next week. I love his therapist but she is a talker. I think Brace is like most men and he can only take so much women talk. Who knows why he married a talker like me? (please don't comment on that) He calls the gym, an old man's gym and says the therapist is lonely. He continues to feel nauseous and awful.
Lake Arrowhead is getting close. Foosball table was installed today for the game room. Both Ryan and Art came to work on the house today. Working on painting the fireplace black, putting together the beds for the bunkroom, taking down dish tv on the roof, building the child's table, high chair and pack and play crib. (The idea is that it is good for family reunions) Our neighbors the Demmons got our packages for us as a favor and saw the high chair and crib and were sure they were in on a secret of James and Kjarstin. They were pretty bummed when they found out Kjarstin was not pregnant. LOL
Tuesday: Our glass guy that installed the stair rail and made a custom kitchen glass table top tried to come to Lake Arrowhead today. On the way the strong winds broke our table top. Sad but true.
Dr. Nguyen said we should stay on all the same meds until we meet next. Brace was tired today and weak but NO throwing up! Hurray!
At night Brace and I went for our Stake temple interviews.
Wednesday: No Therapy - Brace was excited.
Thursday: Physical therapy again. Lots of talking. No throwing up! The slider glass people came to replace the rollers and the handles at Lake Arrowhead. I went to the temple for the first time in months. "Peace beyond comparing."
Friday: Speech therapist appointment today. A woman that gave us swallowing exercises. Just between you and me, he's not that convinced that doing exercises will help him. He is eating real food once a day. It takes him a long time but he can do it!
Saturday: I went to Arrowhead without Brace to get the Hot Tub cover replacement and get Art to help me hang pictures. While I was gone, Brace went to El Pollo Loco to get his favorite chicken and potatoes. He still has four formulas a day through his tube. I left about 5:30pm and raced down the mountain to make it to Stake Conference at 7:15pm. Brace was there with mask and gloves. He didn't feel very good at night and made it for 45 minutes.
Sunday: He felt so much better in the morning. We like mornings. I sang in the choir at 8:15am and he showed up for the meeting at 10am. Most people didn't know who the bald guy was with the black mask. Then when I sat by him at the end of the meeting, they suddenly knew it was Brace.
Monday: A month ago Marantec, Brace's company that he works for, asked him to attend the Salt Lake International Door Association. This will be his first week back at work. Luckily the flight didn't make him sick and he was took three formulas by his tube before we left for the airport. (1500 calories). He wore his mask and gloves at the airport to stay healthy. When we checked in the hotel we walked 2 blocks to PF Changs and he was able to have one or two ribs and quite a few lettuce wraps. (a lot of food for him) The lettuce was very fresh and wet so it worked marvelously and slid right down his throat. The most miraculous thing is that while we were walking to the restaurant we came across ten guys walking back from Settebello's (the Moffitt's favorite place) and it was his team from work. It was fun to meet everyone. Off to bed.... I've got all his meds and formula set up in the room.
Thank you's
*************
Melissa Fulton, Jalane Hong and Staci White for offering to do errands.
Bob Demmon for taking in heavy packages from our house and helping with our trash.
Prayers and well wishes from you online and at church. We can feel your prayers.
Thank you for putting our names on your prayer rolls at your church or temple.
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