A little better day....

So knowing there is such great progress makes our nightmare easier to deal with.

Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center.

Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was.....

Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too.

We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) . He said it didn't hurt too bad. His neck looks pretty burned today, but that is part of the process. They won't give us the future schedule until tomorrow I think. I wouldn't be surprised if we get it before Sunday. We will see.... Karen, the planner, doesn't like that. :)

On the way home he decided he wanted to eat real food so we stopped at Walmart. He stayed in the car and I went in. He wanted deli thin sliced turkey, ham and roast beef. Oh and pumpkin pie... I'm like really? You haven't eaten in days without throwing up and you want meat? But again the poor guy just misses eating. He tried all the meats in the car and got a bite or two of turkey down. That is great news. Progress... His soft palette is so fried and with all the sores on the bottom of his tongue and the inside of his cheeks he can't really swallow right.

While driving home I called the original ENT surgeon to tell him the great news that the tumor was gone. He called us about 3 hours later to talk about the good news.

Brace came home and we did one carton and took a lot of nausea meds and antacids and he kept it down. We watched a movie on my ipad and we used his pump to give him some more blue electrolytes. Before the end of the movie, I served him half of the mini 3 inch pumpkin pie and smothered it with whip cream. He loved loved loved it! As of this posting it has stayed down. Probably 500 calories today but compared to yesterday we are going in the right direction.

Dr. Carroll called to check on us at about 9pm because he was worried about his lack of eating. I was joking that maybe he shouldn't have eaten the pie and the doctor said that is what he would have chosen if he were Brace.

Thank you's

Thank you for your prayers. We feel them.

Thank you for the Christmas cards. They make me smile every time I look at them on our interior door.

Thank you to Logan Johnson and Bob Demmon for driving this weekend to radiation.

Thank you to Carpet Station's Jeff Grotewold for his beautiful pictures of him with his grandson and his father who is struggling with cancer.

Thank you to Logan for dropping by.

Thank you to Kevin & Dale Richards for the thoughtful package and your sweet card and letter. You've been to hell and back and lived to tell about it. It gives us hope.

Thank you again for Christine and Jill Clary.

Thank you for praying for Carey Penrod. The hospital let him come home for Christmas.

Thank you to the anonymous 12 days of Christmas family that keeps bringing presents to our door with a beautiful scripture. Brace is usually the one that goes to the door to find the gift.