Feb 14th, Saturday
We got a text from Dr Carroll today and he approved a blood draw for tomorrow to check his levels and get hydration. We are almost home. Brace screwed a few power failure lights on today. To give me a sense or order in my life I decided to clear off the granite and take a picture. We talked to the tree trimmer today and the blinds for the small windows were installed. (they look beautiful) Tomorrow the painters are coming to paint the mantle and bunk room (6 queen size beds). The other master bedrooms are done. You have to read the last line on the T-shirt picture that the young Heather Savage sent. Happy V day. We are going to try to see She Loves Me the musical tomorrow at Sergestrom. Penelope’s favorite musical. Sad but true Penelope Lake, we will miss you. James and Kjarstin and the Winkler’s are going. Assuming we get some blood or feel great off the mountain.
So when we got home Friday night, I continued to wonder why Brace was feeling so bad and we were so close to the next treatment. Normally right before chemo each time, he feels stable and relatively strong.(thank goodness it is only immunotherapy this Tuesday) He has just felt awful for the last week maybe longer. I just kept trying to figure out what was different. Then I realized it was the meds.
The backstory.... I decided about 2 weeks ago that Brace wouldn't need his pain meds anymore and we should not take them anymore. When we stopped his pain patch I carefully watched him for 24 hours and he seemed fine.
So I ran to Google and sure enough it said that if I stopped his pain patch it would take 48 hours not 24 hours to notice changes. And that he would make him sick for 2 weeks if we stopped cold turkey. Eeeek! So we decided that since Dr. Nguyen didn't authorize stopping that we should start his regimen again. At 7:30pm we gave him his pain patch.
Feb 15th: Sunday
So pain patches can take 12-24 hours to work. They usually start to make a difference at 12 hours so we were hoping at 7:30am there would be improvement and there was a little. I brought his formula and gave me his morning meds. He then took a nap. At 9:30am I went in to see how he was doing and he was sleepy and stable, but he didn't look like he would make it to church. I went to church and enjoyed the peace of God's house and joining with the saints. If you didn't know Kjarstin and James are in our ward so I get to sit with them.
When I came home the priests were here to bring the sacrament to Brace. Sean Robertson, Kyle Myers and his father Dave Myers was their leader and driver. When they came he was making his own smoothie and he looked strong. He is only willing to drink a smoothie much less make a smoothie when his stomach is stable. With his new found stability and freedom from pain he looked and sounded like Brace. Hurrah!
This week we see the Dental Oncologist, Speech Therapist (swallowing), Physical Therapist and infusion center for Immunotherapy.
Thank you for your prayers. Today is a good day.
We got a text from Dr Carroll today and he approved a blood draw for tomorrow to check his levels and get hydration. We are almost home. Brace screwed a few power failure lights on today. To give me a sense or order in my life I decided to clear off the granite and take a picture. We talked to the tree trimmer today and the blinds for the small windows were installed. (they look beautiful) Tomorrow the painters are coming to paint the mantle and bunk room (6 queen size beds). The other master bedrooms are done. You have to read the last line on the T-shirt picture that the young Heather Savage sent. Happy V day. We are going to try to see She Loves Me the musical tomorrow at Sergestrom. Penelope’s favorite musical. Sad but true Penelope Lake, we will miss you. James and Kjarstin and the Winkler’s are going. Assuming we get some blood or feel great off the mountain.
So when we got home Friday night, I continued to wonder why Brace was feeling so bad and we were so close to the next treatment. Normally right before chemo each time, he feels stable and relatively strong.(thank goodness it is only immunotherapy this Tuesday) He has just felt awful for the last week maybe longer. I just kept trying to figure out what was different. Then I realized it was the meds.
The backstory.... I decided about 2 weeks ago that Brace wouldn't need his pain meds anymore and we should not take them anymore. When we stopped his pain patch I carefully watched him for 24 hours and he seemed fine.
So I ran to Google and sure enough it said that if I stopped his pain patch it would take 48 hours not 24 hours to notice changes. And that he would make him sick for 2 weeks if we stopped cold turkey. Eeeek! So we decided that since Dr. Nguyen didn't authorize stopping that we should start his regimen again. At 7:30pm we gave him his pain patch.
Feb 15th: Sunday
So pain patches can take 12-24 hours to work. They usually start to make a difference at 12 hours so we were hoping at 7:30am there would be improvement and there was a little. I brought his formula and gave me his morning meds. He then took a nap. At 9:30am I went in to see how he was doing and he was sleepy and stable, but he didn't look like he would make it to church. I went to church and enjoyed the peace of God's house and joining with the saints. If you didn't know Kjarstin and James are in our ward so I get to sit with them.
When I came home the priests were here to bring the sacrament to Brace. Sean Robertson, Kyle Myers and his father Dave Myers was their leader and driver. When they came he was making his own smoothie and he looked strong. He is only willing to drink a smoothie much less make a smoothie when his stomach is stable. With his new found stability and freedom from pain he looked and sounded like Brace. Hurrah!
This week we see the Dental Oncologist, Speech Therapist (swallowing), Physical Therapist and infusion center for Immunotherapy.
Thank you for your prayers. Today is a good day.
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