Skip to main content

Working at the Lake or Not

So on Wednesday we drove up the mountain. I took Brace off all his meds so he could drive. He was very happy to not be a passenger. We arrived and he didn't really feel so good. He barely slept at night. I think the nausea meds might create insomnia. It didn't matter when he was on pain meds. The next night I took him off all the nausea meds and that seemed to help. He hoped to be able to work here at the lake a little, but he has been very very weak. I texted Dr. Carroll and he said the altitude might mess with his anemia. We are going down the mountain on Friday to test his blood levels to see if he needs some more blood. Thank you to Bob Demmon. Thank you to Michelle for offering to do a UPS run. Thank you to Bev for getting our meds at Walmart.

Last Monday, we met with three doctors which included Dr. Chou the radiologist and the Oncology Dietician. Everyone seems to think it will take Brace a long time to eat normally without salivary glands. They think those will be working in 12-18 months. He is making a little progress and tries to eat 10 bites of two meals in addition to his formula. We did get a PT appointment to help him get stronger and a therapist to work on his swallowing skills.

I guess Brace and I lived in this world thinking that once chemo was done we would be better every day. We still like to live in that world, but it doesn't look realistic. (Please don't tell us horror stories)

While we have been here the following people have come....
  • Martin - the main guy doing everything.
  • Nick - helping finish up things
  • Doug - making sure all the window sliders are beautiful and working properly.
  • Rick the spa guy to test the hot tub and make sure everything is working properly.
  • Rick the HVAC duct guy that did a terrific job on cleaning all the ducts.
  • Steve - the guy making sure no pests are in the attic.
  • Spectrum Cable - making sure the phone and cable are working properly.
  • Hunter Douglas - blinds are coming in the morning.
  • Foosball table install is Saturday when we are gone.

Feeling blessed but I AM SO TIRED.


Comments

Post a Comment

Popular posts from this blog

Brace never complains

Brace is pretty stable. Friday was a bad day at radiation. The new mask was way too tight and he wasn't happy about it. We talked with Alice and the techs and hopefully they will have that resolved by Monday's appointment. On Friday Drew and Kathleen Himber came to visit us. (They live in Chicago these days) Brace felt pretty good today and he was able to eat a few bites of food. He seems to really likes drinking ice water right now and we hope that doesn't go away with chemo treatment starting on Tuesday. Brace... never complains never feels like a victim never asks why him Karen... feels positive in the morning feels overwhelmed at night What to Pray or Fast for? We are worried about chemo next week coupled with radiation. (Tuesday, Wednesday, Thursday) This will be round four and every time he does chemo he gets sicker than the last time. They will add a nuepogen shot on Friday. Thank you's... Bob Demmon for driving on ...
Post a Comment
Read more

Chemo Week Round 4

I'm sitting here in our adjustable bed (we are spoiled) with Brace listening to Jesus is Just Alright with Me while I finally update the blog.  That is a great song....  I also like The Spirit in the Sky, but Brace is not convinced it is as good as Just Alright.  He accidentally hit my song and we're listening to Spirit in the Sky. Short Version: Brace has chemo this week (3 days) and radiation ends tomorrow! Next week should be awful. Saturday Star Wars:  So Brace felt pretty stable Saturday.  When Corte Haggard took him to radiation last week he got him all jazzed about Star Wars.  So at around 3:30 we went to Foothill with James and Kjarstin to see Star Wars.  Brace was decked out with mask and gloves.  We enjoyed the movie but it wiped him out and so we headed home to try to go to bed early. FLOOD: James and Kjarstin had been working on some Glee projects in the music lab so they headed to Glee after the movie. (Tender me...
Post a Comment
Read more

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...
Post a Comment
Read more