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Working at the Lake or Not

So on Wednesday we drove up the mountain. I took Brace off all his meds so he could drive. He was very happy to not be a passenger. We arrived and he didn't really feel so good. He barely slept at night. I think the nausea meds might create insomnia. It didn't matter when he was on pain meds. The next night I took him off all the nausea meds and that seemed to help. He hoped to be able to work here at the lake a little, but he has been very very weak. I texted Dr. Carroll and he said the altitude might mess with his anemia. We are going down the mountain on Friday to test his blood levels to see if he needs some more blood. Thank you to Bob Demmon. Thank you to Michelle for offering to do a UPS run. Thank you to Bev for getting our meds at Walmart.

Last Monday, we met with three doctors which included Dr. Chou the radiologist and the Oncology Dietician. Everyone seems to think it will take Brace a long time to eat normally without salivary glands. They think those will be working in 12-18 months. He is making a little progress and tries to eat 10 bites of two meals in addition to his formula. We did get a PT appointment to help him get stronger and a therapist to work on his swallowing skills.

I guess Brace and I lived in this world thinking that once chemo was done we would be better every day. We still like to live in that world, but it doesn't look realistic. (Please don't tell us horror stories)

While we have been here the following people have come....
  • Martin - the main guy doing everything.
  • Nick - helping finish up things
  • Doug - making sure all the window sliders are beautiful and working properly.
  • Rick the spa guy to test the hot tub and make sure everything is working properly.
  • Rick the HVAC duct guy that did a terrific job on cleaning all the ducts.
  • Steve - the guy making sure no pests are in the attic.
  • Spectrum Cable - making sure the phone and cable are working properly.
  • Hunter Douglas - blinds are coming in the morning.
  • Foosball table install is Saturday when we are gone.

Feeling blessed but I AM SO TIRED.


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