Day 1, Day 2, Day 3 of Chemo

Today is Brace's Cancer party.  We moved it to Glee at 20902 Bake Parkway, Suite 100 so we wouldn't need to limit who could come.  Here's the latest.... 

10/31/2019  Radiation Oncologist

After Day 1 of Chemo, we headed over to Dr. Chou, the Radiation oncologist, with our amazing nurse practitioner, Alice.  Basically they are going to use radiation to target only the areas of his face that have the cancer.  Once we get fitted for the teeth guard (to protect his teeth) next week and they will complete the radiation mapping they can start radiation. We are told 7 weeks, 15 minutes a day Monday through Friday.  We think they might start the same time as our next round of chemo. The picture of the radiation mask above is from my friend, who just found out she was cancer free last week!  

Then my dear friend took me to see my niece, Leslie, in the opera, Orpheus and the Underworld, while Kjarstin and James talked to Brace for hours before he crashed. We love those two....

11/1/2019 Chemo #2 / Tests

We got his tests bumped a week not knowing how traumatic it would be.  7am MRI brain and 3 CT scans with contrast meant Brace had to wake up at 3:30am and 5:30am to drink what Brace calls "bull semen".  It made him soooo sick and then when he arrived the lab tech told him most people don't drink all of the 2 liters. He was not impressed.  Then later in the day Kjarstin took him to chemo day #2 for the sushi party below.  The woman picture on Kjarstin's post is snapchat making Brace into a woman.  Only Kjarstin & Brace........ It was a rough rough night with the liquid and the chemo. 

11/2/2019 Singing Event / Scott / Frazier's. 

Karen had an all day event (NATS) for her singing students in Fullerton.  Brace took a short walk in the morning.  They really want him to walk every day.  Scott Lake, our nephew, flew in from Connecticut and made sure Brace ate and drove him to day 3 of chemo.  They used to work together at Martin. Chemo was uneventful which was a blessing and we loved seeing Scott. 

After chemo the Frazier's arrived from St. George to attend the party on Sunday.  We went to Outback and Brace had a good appetite.  Brace struggled with nausea but was finally able to sleep. 

11/3/2019  Special Prayer/Fast and 7-8:30 Cancer Party

Thank you for the special group prayer today.  We are praying that he can eat and drink and exercise even when he feels awful.  This will help him fight the cancer. 

See you at the party later today. 

Thank you's

Scott Lake, Sue Frazier and Jeff Frazier.
All the people helping with the Cancer Party. Again Kjärstin Swift and James Swift and Jane and Erik Larsen are doing that.
The meal that was brought on Saturday.
Taking Brace to chemo
Taking pictures at the party
Love and prayers for Brace. We had so many scheduling miracles this week.

Comments

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....

Brace is the Man

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