Working out radiation

Thank you to James Swift and Michael Silverberg.  Radiation last night and this afternoon.   James sent me a picture of the sign telling us the doctor's office was sexist.  As you can see, James fits in well with the family.  Thank you to Michael by being crazy flexible on timing when radiation changed the appointment last night. 

During radiation they nudged him less and he was able to position his mouth better to breath during the treatment. I am amazed at how many people do this.  WOW. 

This morning Brace has a headache and feeling more wiped out. He's trying to work until he no longer can.  We think he might make it through next week. Chemo 2.1 starts next Thursday.  He still looks great, but clumps of hair started coming out today in the shower.  Oh happy day.  Again you can't tell his hair is coming out, but it's starting. 

Tomorrow: MRI Liver, Brain Surgeon appointment and radiation.  

Thank you's

Thank you for driving. 

Thank you for visiting me yesterday when you were in town.  Yogurt and flowers are always good. 

Thank you for the six crazy wigs and the sweet cards.  I'm not sure he is really going to be wearing those.  Actually I'm pretty sure he won't but he had a great laugh.  You know it - the "Lake turkey laugh". 

Thank you to Kjarstin for running Glee while I'm not. 

Thank you for the help to get a great financial trust going for such a low price.  

Thank you for bringing us a healthy dinner tonight. 

Thanks to the Webber boys for taking our trash cans out.  Thank you to Bob who secretly brings them in. 

Thank you for calling and chatting with Brace.  

Thank you for your texts. 

Thank you for writing Penelope. penelope.lake@missionary.org

Thank you for reaching out to Savannah on Facebook.

Image may contain: James Swift, smiling, eyeglasses and closeup

Comments

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....

Brace is the Man

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