Skip to main content

Oncology Check-up / Making the Radiation Map / Brain Tumor

11/8/2019
Oncology check-up today.
  • Decided to start immunotherapy at the same time as chemo and radiation. This will help his system build his immune system. We will go pick up at Walmart before I start teaching.
  • Unlike chemotherapy, which acts directly on cancerous tumors, immunotherapy treats you by acting on your immune system. Immunotherapy can both activate a stronger than normal immune response in your body as well as teach your immune system how to identify and destroy cancer cells
  • Changed to a different nausea medication for the next round of chemo.
  • They said Tylenol is OK to take for his headache when he doesn't want a bid pain pill. They tell you to not take so many things, it is hard to keep track.
  • Called his referral to the Nuerosurgeon at Hoag. He only works on Tuesday/Thursday and didn't have many openings.
  • He has a lesion on his liver and they want an additional MRI for that.
  • Dr. Carroll took his findings to his conference (like a tumor board) at Hoag on Wednesday. They liked the idea of the immunotherapy and they wanted the brain tumor to be addressed.
Radiation Oncology
  • They made his radiation mask using his teeth guards. Brace said he felt like Darth Vadar when they molded it to his face.
  • They are working on the map this weekend and hope to let us know by late Monday on what day they can start radiation next week.
  • We got another referral to the Nuerosurgeon that works with Dr. Chou. They're at lunch so that might not happen today.
  • Dr. Chou and Dr. Carroll are thinking the tumor in his brain is not cancerous because it is not lit up and isn't close to the tumor near his nose and throat.
  • They are going to broaden the radiation to include the lymph nodes that have cancer evidence.
Thank you's
  • Folding clothes
  • Emptying kitchen trash
  • Ordering something on Costco online
  • Sweeping my kitchen floor
  • Amazing dinner Thai dinner last night
  • PIcking stuff up at the store.
  • Willing to paint my samples
  • Shipping my amazon projects.
  • Rearranging my voice lessons

No Doctor Appointments All Weekend!

Comments

Popular posts from this blog

Brace never complains

Brace is pretty stable. Friday was a bad day at radiation. The new mask was way too tight and he wasn't happy about it. We talked with Alice and the techs and hopefully they will have that resolved by Monday's appointment. On Friday Drew and Kathleen Himber came to visit us. (They live in Chicago these days) Brace felt pretty good today and he was able to eat a few bites of food. He seems to really likes drinking ice water right now and we hope that doesn't go away with chemo treatment starting on Tuesday. Brace... never complains never feels like a victim never asks why him Karen... feels positive in the morning feels overwhelmed at night What to Pray or Fast for? We are worried about chemo next week coupled with radiation. (Tuesday, Wednesday, Thursday) This will be round four and every time he does chemo he gets sicker than the last time. They will add a nuepogen shot on Friday. Thank you's... Bob Demmon for driving on ...

Chemo Week Round 4

I'm sitting here in our adjustable bed (we are spoiled) with Brace listening to Jesus is Just Alright with Me while I finally update the blog.  That is a great song....  I also like The Spirit in the Sky, but Brace is not convinced it is as good as Just Alright.  He accidentally hit my song and we're listening to Spirit in the Sky. Short Version: Brace has chemo this week (3 days) and radiation ends tomorrow! Next week should be awful. Saturday Star Wars:  So Brace felt pretty stable Saturday.  When Corte Haggard took him to radiation last week he got him all jazzed about Star Wars.  So at around 3:30 we went to Foothill with James and Kjarstin to see Star Wars.  Brace was decked out with mask and gloves.  We enjoyed the movie but it wiped him out and so we headed home to try to go to bed early. FLOOD: James and Kjarstin had been working on some Glee projects in the music lab so they headed to Glee after the movie. (Tender me...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...