11/11/2019 Brace's Liver and Radiation

11/11/2019 Brace's Liver and Radiation

So I read the latest CT report on the way to a Dr's appointment from Friday.  I didn't realize that they see three tumors in his liver.  They didn't light up which means they hope it is not cancerous,  but they have ordered another MRI to see his liver more closely.   

I tried to make an appointment with Dr. Chang who is the Executive Director of the CHAO GI Center at UCI.  Of course they were closed because of Veteran's Day.  I tried to schedule the MRI but they were closed too. 

Then Alice, the amazing oncology nurse, called to see how I was doing.  I basically just started crying....  But I had to teach in five minutes so I told her I was stressed about scheduling the test.  She texted me in 30 minutes and made it happen at Mission.  Oh how we love Alice! 

Then at 8:00PM, Dr. Chou's office called and said radiation starts tomorrow.   Because of last week's lymph node findings they are going to do 33 sinus area treatments and the 28 lymph node treatments. 

Here's my education for the day.... 

Radiation Oncologist: The doctor that meets with the patient and decides how they should proceed. 

Symmetrist: He creates the treatment plan on the computer and then reviews with the doctor.  (not sure of the spelling)

Physicist: He also creates the treatment plan and works with the doctor. 

Therapist: Takes the pictures, works with the patients and pushes the button to make the treatment happen.  Chris, was the therapist, who helped scheduled this week's treatments. 

Thank you's..... 

Thank you for painting the samples for the house colors. That was a big job. 

Thank you for sending my packages back to Amazon.  My children can attest that I hate anything to do with the mail. 

Thank you for sending the pictures to Penelope. 

Thank you for helping with the laundy.  

Thank you for being willing to drive. 

Thank you for your funny funny email to Brace. 

Thank you for calling Brace to chat. 

Thank you helping me get everything in order financially.

Thank you for your texts to Karen. 

Thank you for realizing that this is hard on my girls. They all look strong but they need your love. 

Thank you for writing Penelope emails. penelope.lake@missionary.org 

Image may contain: 6 people, including Kjärstin Swift and James Swift, people smiling, people standing and suit

Comments

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....

Brace is the Man

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