Brain Tumor / Chemo #2.1 / Handicapped Placard

I saved and published before proofreading.  My power was dying.... Eeek.   I think I corrected. :)

Tuesday / Wednesday 11/19-20 Brain Tumor

Morning radiation Tuesday morning and then off to a client meeting with his amazing boss Dave Haslam in Vegas. 

At 4pm on Wednesday we had an appointment with Dr. Vikas Rao, the Neurosurgeon near Mission Hospital.  He is also thinking the tumor is not cancerous and is probably not a problem.  He says Brace has much bigger fish to fry. He will be measuring the size when they do the next MRI for his face and brain to determine the growth rate.   We have an appointment for February to see what they want to do once we are done with the cancer treatments. 

Then off to radiation #7 at 6:10 and then home to eat a nice meal and collapse. 

Thursday. 11/21 Chemo #2.1

Blood tests this morning at 7:30am.  8:30am Chemo 2.1 started and it was the first day of chemo with the port.  10:00am Blue Cross approves immunotherapy in peer to peer review with Dr. Carroll.  He was pretty stoked that he got them to approve it.  I think Immunotherapy costs about $250,000 if Google can be trusted.  (I'm not sure they can be trusted). 

Chemo will now be 7 hours due to the extra infusion. (only on day 1 of the series of three days).  Then after all that he will come home and head over to radiation.  Chemo is Friday and Saturday too.  It will be a rough weekend.  He has almost no energy, but this is what we signed up for. :)

Immonotherapy & Handicapped Placard

The drugs that we thought were part of the immunotherapy are anti-nausea drugs.  He takes those the first four days of chemo.  He took it this morning and it totally knocked him out.  They said he should take it night from now on. Live and learn.  After the drugs wore off, he was joking again.  Karen was relieved. 

The immunotherapy is given as an infusion the last hour of chemo on the first day.  It is called Atezolizumab or the trade name Tecentriq. 

DMV paperwork.  We got the DMV paperwork signed by the doctor so he could get a disabled placard for the car.  As my girls know, Brace likes to park far usually, but he will be a gimp for quite a few months so he thought that getting a placard was a good idea.

Thank you's. 

Michelle for doing my Christmas notebooks - they are so beautiful!  

Corte for hanging with Brace during chemo today. 

Michael Silverberg and Bill Brown for driving today. 

Annelle for making dinner last night.  He loved the soup and the bread! 

Texts to Brace and I. 

Writing Penelope emails. 

Thank you to the Webber boys for doing the trash. 

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Comments

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....

Brace is the Man

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