Treatment #2 today after a break

Many have asked today how we are doing. He's taking a nap and feeling settled, so I thought I would give you the latest.

Threw up first thing this morning before his formula.
Went to his radiation treatment today at 11:45am.
Tongue is starting to swell again.
Throat is sore.
He was able to have a 1/4 cup of soup today. :)
Is currently taking his third carton of formula and nothing else has come up.
He had electrolytes twice today.
He was hot and I just took his temp. 100.8. I texted Alice to let her know. Hopefully the Tylenol will help.
Radiation treatment will end the 2nd week of January so a little more than 2 weeks and the throat radiation targeting will stop. :)
Will work on driving schedule as soon as radiation gives me a calendar. Karen, the planner, doesn't like their lack of planning....
Got chemo scheduled for Irvine now starting Jan 7th. (yes, no longer do we need to go to Newport) . The Hoag infusion center is right on Sand Canyon.
I am feeling less beaten down today. Dr. Carroll said we can text him anytime we are concerned that Brace needs extra help so I'm not alone. :)
Brace had dreamed over going to church tomorrow in his red suit, but he can barely take a shower without throwing up so I don't think that is going to happen. It should be a great meeting. Great messages of Jesus Christ and the ward choir will be singing beautiful songs. It should be a beautiful meeting at 9am tomorrow morning.

Thank you's

Thank you to Jalane Hong for getting his meds at Walmart.

Thank you to Jeri and Mario Juarez for the ginger ale and the Reeds ginger drink.

Thank you to Mark and Annelle Wells for the soup

Thank you for Pete Radke bringing me your darling mom's homemade food for me.

Thank you for the herbal tea and beautiful card Toni Ho.

Thank you to the Yahya family for the gift. I love our neighbors.

Thank you to Vicky for the cut up pineapple

Thank you again for Logan Johnson driving today and Bob Demmon driving tomorrow.

Thank you to the Cronin's for the presents and offer to drive.

Thank you for your prayers. We feel them.

Comments

Tumor is Large / Small Cell not SNEC

October 25 at 5:40 PM MRI/CT: The tumor is large measuring 5.2 cm by 3.1 cm, but it seems to only be on one side. According to these tests it is NOT touching the brain and is NOT in the lymph nodes. It says the eyes are in the right position. The tests say he probably can't smell. :) We meet with the oncology nurse practitioner for Dr. Luu and she explained the reports for the MRI and the CT. We think Dr. Luu will review on Monday. On Wednesday we see the eye doctor to see what is happening the re. Final Biopsy came back: Small cell neuroendocrine carcinoma of the paranasal sinuses (SNEC) is the new diagnosis. From Google - this is an uncommon tumor. (Before they thought it was SNUC) This tumor usually occurs in the lungs, the extra-pulmonary form accounts for only about 4% of all cases. Primary SNEC of the paranasal sinuses is extremely rare; only about 76 cases have been reported in literature. Unfortunately due to the rarity of this neoplasm, there a...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

A little better day....

So knowing there is such great progress makes our nightmare easier to deal with. Thanks to your prayers, we both were able to sleep. 10 hours for Brace. I was able to exercise which makes everyone happy. :) On my bike I rode 15.5 miles in an hour thanks to watching the VidAngel version of Jake Ryan saving the world in Venezuela. I'm a Zwifter if you know that that is. After riding, radiation called and said they were ready for us at 1:15pm today in the new cancer center. Christine and Jill Clary came this morning at 9:45am and helped me get the house ready for our family party on Monday. Oh how sweet that was..... Upon waking up he ate the new formula through his g-tube, half a carton 250 calories, before taking a shower. After the shower, he threw up stomach acid and formula. Very painful process . :( . He threw up an hour later too. We went to the treatment at 1:15 at Mission. (I think that is treatment #20 of 33 treatments) ....

Brace is the Man

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