Treatment #2 today after a break

Many have asked today how we are doing. He's taking a nap and feeling settled, so I thought I would give you the latest.

Threw up first thing this morning before his formula.
Went to his radiation treatment today at 11:45am.
Tongue is starting to swell again.
Throat is sore.
He was able to have a 1/4 cup of soup today. :)
Is currently taking his third carton of formula and nothing else has come up.
He had electrolytes twice today.
He was hot and I just took his temp. 100.8. I texted Alice to let her know. Hopefully the Tylenol will help.
Radiation treatment will end the 2nd week of January so a little more than 2 weeks and the throat radiation targeting will stop. :)
Will work on driving schedule as soon as radiation gives me a calendar. Karen, the planner, doesn't like their lack of planning....
Got chemo scheduled for Irvine now starting Jan 7th. (yes, no longer do we need to go to Newport) . The Hoag infusion center is right on Sand Canyon.
I am feeling less beaten down today. Dr. Carroll said we can text him anytime we are concerned that Brace needs extra help so I'm not alone. :)
Brace had dreamed over going to church tomorrow in his red suit, but he can barely take a shower without throwing up so I don't think that is going to happen. It should be a great meeting. Great messages of Jesus Christ and the ward choir will be singing beautiful songs. It should be a beautiful meeting at 9am tomorrow morning.

Thank you's

Thank you to Jalane Hong for getting his meds at Walmart.

Thank you to Jeri and Mario Juarez for the ginger ale and the Reeds ginger drink.

Thank you to Mark and Annelle Wells for the soup

Thank you for Pete Radke bringing me your darling mom's homemade food for me.

Thank you for the herbal tea and beautiful card Toni Ho.

Thank you to the Yahya family for the gift. I love our neighbors.

Thank you to Vicky for the cut up pineapple

Thank you again for Logan Johnson driving today and Bob Demmon driving tomorrow.

Thank you to the Cronin's for the presents and offer to drive.

Thank you for your prayers. We feel them.

Comments

Brace never complains

Brace is pretty stable. Friday was a bad day at radiation. The new mask was way too tight and he wasn't happy about it. We talked with Alice and the techs and hopefully they will have that resolved by Monday's appointment. On Friday Drew and Kathleen Himber came to visit us. (They live in Chicago these days) Brace felt pretty good today and he was able to eat a few bites of food. He seems to really likes drinking ice water right now and we hope that doesn't go away with chemo treatment starting on Tuesday. Brace... never complains never feels like a victim never asks why him Karen... feels positive in the morning feels overwhelmed at night What to Pray or Fast for? We are worried about chemo next week coupled with radiation. (Tuesday, Wednesday, Thursday) This will be round four and every time he does chemo he gets sicker than the last time. They will add a nuepogen shot on Friday. Thank you's... Bob Demmon for driving on ...

Chemo Week Round 4

I'm sitting here in our adjustable bed (we are spoiled) with Brace listening to Jesus is Just Alright with Me while I finally update the blog. That is a great song.... I also like The Spirit in the Sky, but Brace is not convinced it is as good as Just Alright. He accidentally hit my song and we're listening to Spirit in the Sky. Short Version: Brace has chemo this week (3 days) and radiation ends tomorrow! Next week should be awful. Saturday Star Wars: So Brace felt pretty stable Saturday. When Corte Haggard took him to radiation last week he got him all jazzed about Star Wars. So at around 3:30 we went to Foothill with James and Kjarstin to see Star Wars. Brace was decked out with mask and gloves. We enjoyed the movie but it wiped him out and so we headed home to try to go to bed early. FLOOD: James and Kjarstin had been working on some Glee projects in the music lab so they headed to Glee after the movie. (Tender me...

MRI, no Brain Surgeon, Friday Radiation

Liver MRI : Brace had an uneventful MRI this morning. It takes a while for the write-up and CD. After talking with Dr. Carroll the other day I'm not that worried about it. He then ran to LA to work with a client today. Trust: One of my clients is an estate lawyer and was kind enough to meet with me this morning to setup our family trust. Everything should be set by next week. If you need a referral, she was amazing and gave me great advice. Dana and LouAnn Lake came to visit Brace this afternoon from Arizona. It was a treat to see them. I forgot to take a picture. Brain Surgeon : He was on call at the hospital and had two surgeries. We postponed out appointment to next Wednesday. Fast Radiation: We are coming home now from radiation. It was his fastest yet. He doesn't complain or freak out, which they said is uncommon. Until we did this I had no idea what radiation on your face really meant. We are thrilled with the doctors and the techs her...

Brace is the Man

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