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Palliative Care Doctor

GOOD NEWS: As of 2 hours ago we all have all the meds the Palliative doctor prescribed yesterday. A few hours ago he had a fever so I ground up some Tylenol and gave that to him through his tube. Then an hour later I added his new meds that we hope will keep him asleep.
Tomorrow we meet with the Home Health Dietician here at the house. I don't expect much from her, but hope she can tell us about pump feeding and if we can put something other than formula in the tiny tube. He is up to 2500 calories for the last two days and with his pain being more manageable he is able to use more of the mouthwash and Bioten. This helps the sores in his mouth and his swelling tongue. His tongue is still very swollen but about 3 x the size instead of 4 x the size. He is able to talk a little today. We still mostly use the notebook and texting. He is missing real food and we asked Caitlin Johnson to get him some gourmet rootbeer at Trader Joe's and he actually got three sips down. Then he decided to take the rest in his tube. That way when he burbs he can taste the rootbeer?

When Annelle came over tonight he told her that dinner with her and Mark at Outback was his last supper.

We hope tonight he will sleep all night.....

Brace wanted me to include this....
"Love you brother. Faith and fight. God loves the ugly mentally challenged bastards like us." Chris Cole from ABS, who he worked with at Euroline Windows.

Solidarity Pictures:
Durran Fewkes- dear friend from Cypress.

Thank you's:
Beverlee Leung for putting together the hospital table and buying the neck pillow
Brace's dealers who have been so understanding during his cancer fight.
Annelle Wells for feeding Kjarstin, James and me.
Mike Silverberg for being ready to drive two days in a row
Lorie Still for the pomegranate seeds for me.
Caitlin Johnson for the rootbeer
Melissa Calvano for emptying the trash inside the house
Anne Cox for folding my clothes during lessons.

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