I haven't posted in a while so people are starting to ask....
How is Brace?
Not so good, but he is trying to stay positive. We knew December would be a rough month. We were not wrong. Right now his pain is between a 7 and a 8 but when he talks or tried to drink something it shoots to a ten. That means he is trying to only write on a notepad or text. It is quiet at our house. :) . He eats and drinks through the tube. Thank you to Larry for helping us learn of all the feeding tube contraptions. We loved your pictures, devices and movies.
Friday 11/29
Blaine, Brace's brother, came to visit for the day. We loved having Blaine here to get Brace's turkey laugh in action. (He still was able to talk a little that day) . Blaine was able to hang out with Brace a few hours that night so I could choose and purchase couches for the Arrowhead cabin.
I was so bummed that I didn't take his picture. Ugh
Saturday 11/30
The Perkins' family (Karen's sister) was willing to move Thanksgiving to Saturday so we could visit with the Larsen's on Thursday and in hopes that he might feel better with no radiation on Wednesday, Thursday and Friday. Sadly his throat was worse..... He fed his formula through his tube while the rest of us lucky souls got to partake of the amazing Perkins' Thanksgiving. Geneil, Dominique and Leslie were all in town. It was a nice day, but it really tried Brace out. We love our family.
After we got home, I got his meds ready and flew to the temple for an hour in Newport Beach. I love the temple and was glad to feel the peace of the Lord there. Corey Procuniar was working security in the parking lot on the way out and listened to me talk for 20 minutes before I rushed home to Brace.
At night we paged the doctor, over our concern of not having enough meds to get him through this incredibly painful ordeal. He is in pain 24/7. Our amazing doctor returned our call at 11pm. He is going to try to get a palliative doctor to help us. They coordinate and try to find solutions to the painful symptoms, I guess. Maybe Monday? The thought of this getting worse every day seems pretty awful, but with every radiation and chemo treatment he will feel worse.
I tried to finish the rest of the cabin furniture online with the Black Friday deals until 2am. I think I have very few things left..... Appliances installed on Tuesday. All three bathrooms are complete and the tile flooring is done.
Sunday 12/1
Brace woke up rearing to go. When I got up at 8:30am, he had already showered, done a feeding, taken his mouth medicine and ten other things. Then he collapsed and took a nap. I finally got on my exercise bike and then got dressed in time for the priests to come and bring us the sacrament. Then brother Dayley came over and gave Brace and I a blessing. Kjarstin and James came to hang out with us too. During the blessing Robyn dropped off a healthy delicious dinner for Karen because she knew that Dave and Diana Haslam from Utah were coming over to visit. To be funny Dave brought over 4 Jumbo Jack tacos which Brace thought was hilarious. Karen, that's me, thinks those tacos shouldn't even be a food group. Who knows what is in them. Right? Luckily for Brace's health, he's not eating anything through his mouth now. We love Dave and Diana.
What to Pray For?
Pray that he can sleep
Pray that Karen can stay healthy.
Pray that we find a doctor that can manage his pain
New Solidarity Pictures
Nik Nielson - shaved his hair for Brace (used to be a missionary in the Foothill Ranch ward)
Nathan White - grew sideburns. He says he gets some funny looks from work.
Thank you's
Dave Blackledge for unclogging our sink.
The Williams' family for putting up our lights on the porch.
Sandi Schreiber for coming over to receive our Walmart delivery
Webber boys for taking out our trash and Bob for bringing it back.
James for decorating our tree and making it look like we are ready for Christmas.
Great memory letter from Tom and Dorothy
Texting memes to Brace
Ronnetta for making Stake Music happen
Cards and old fashioned letters to Penelope
How is Brace?
Not so good, but he is trying to stay positive. We knew December would be a rough month. We were not wrong. Right now his pain is between a 7 and a 8 but when he talks or tried to drink something it shoots to a ten. That means he is trying to only write on a notepad or text. It is quiet at our house. :) . He eats and drinks through the tube. Thank you to Larry for helping us learn of all the feeding tube contraptions. We loved your pictures, devices and movies.
Friday 11/29
Blaine, Brace's brother, came to visit for the day. We loved having Blaine here to get Brace's turkey laugh in action. (He still was able to talk a little that day) . Blaine was able to hang out with Brace a few hours that night so I could choose and purchase couches for the Arrowhead cabin.
I was so bummed that I didn't take his picture. Ugh
Saturday 11/30
The Perkins' family (Karen's sister) was willing to move Thanksgiving to Saturday so we could visit with the Larsen's on Thursday and in hopes that he might feel better with no radiation on Wednesday, Thursday and Friday. Sadly his throat was worse..... He fed his formula through his tube while the rest of us lucky souls got to partake of the amazing Perkins' Thanksgiving. Geneil, Dominique and Leslie were all in town. It was a nice day, but it really tried Brace out. We love our family.
After we got home, I got his meds ready and flew to the temple for an hour in Newport Beach. I love the temple and was glad to feel the peace of the Lord there. Corey Procuniar was working security in the parking lot on the way out and listened to me talk for 20 minutes before I rushed home to Brace.
At night we paged the doctor, over our concern of not having enough meds to get him through this incredibly painful ordeal. He is in pain 24/7. Our amazing doctor returned our call at 11pm. He is going to try to get a palliative doctor to help us. They coordinate and try to find solutions to the painful symptoms, I guess. Maybe Monday? The thought of this getting worse every day seems pretty awful, but with every radiation and chemo treatment he will feel worse.
I tried to finish the rest of the cabin furniture online with the Black Friday deals until 2am. I think I have very few things left..... Appliances installed on Tuesday. All three bathrooms are complete and the tile flooring is done.
Sunday 12/1
Brace woke up rearing to go. When I got up at 8:30am, he had already showered, done a feeding, taken his mouth medicine and ten other things. Then he collapsed and took a nap. I finally got on my exercise bike and then got dressed in time for the priests to come and bring us the sacrament. Then brother Dayley came over and gave Brace and I a blessing. Kjarstin and James came to hang out with us too. During the blessing Robyn dropped off a healthy delicious dinner for Karen because she knew that Dave and Diana Haslam from Utah were coming over to visit. To be funny Dave brought over 4 Jumbo Jack tacos which Brace thought was hilarious. Karen, that's me, thinks those tacos shouldn't even be a food group. Who knows what is in them. Right? Luckily for Brace's health, he's not eating anything through his mouth now. We love Dave and Diana.
What to Pray For?
Pray that he can sleep
Pray that Karen can stay healthy.
Pray that we find a doctor that can manage his pain
New Solidarity Pictures
Nik Nielson - shaved his hair for Brace (used to be a missionary in the Foothill Ranch ward)
Nathan White - grew sideburns. He says he gets some funny looks from work.
Thank you's
Dave Blackledge for unclogging our sink.
The Williams' family for putting up our lights on the porch.
Sandi Schreiber for coming over to receive our Walmart delivery
Webber boys for taking out our trash and Bob for bringing it back.
James for decorating our tree and making it look like we are ready for Christmas.
Great memory letter from Tom and Dorothy
Texting memes to Brace
Ronnetta for making Stake Music happen
Cards and old fashioned letters to Penelope
Comments
Post a Comment